9th biopsy & 1st outing
Hi!
Well I just had my 9th cardiac biopsy and was allowed to travel (within the US) for the first time since the transplant! Everything seems to be going pretty smoothly. My biopsy was on Jan. 25 and was a little worse than the previous biopsy at 1A rejection, but still acceptable. Because of this I get to go down on my prednisone (steroids for immunosuppression), and don't have to go back to Cleveland for about 6 weeks instead of the usual 4 week interval. The CMV was also negative for the third time, and my IgG was >800 (meaning a better working immune system than previously). I had an appointment with my infectious disease doctor and I will continue the Valcyte (med for the CMV) through at least March and then switch to acyclovir. I was also able to get the flu shot and pneumovax (vaccine for bacteria that may cause pneumonia), as the infectious disease doctor thinks I may have an active enough immune system now to actually have a response to the vaccine. I also have been chosen by Cleveland clinic as the case of the year so I get to be presented at their meeting in March and they are sending a camera crew down here! Very weird since I used to be the one presenting the interesting cases instead of being one. I hope it helps if I can answer questions from the other physicians, though.
I also went to Miami to be in one of my best friend's weddings. It was beautiful and I am so happy I was able to participate in the wedding. In true Jenn fashion though, I think I may have overexerted myself since I now have bronchitis, but it was worth it to be able to travel and see so many of the friends I love and be a part of such a special event. Well my next lab work will not be until next week. I also want to say a special prayer for one of my other best friend's dad, who recently had open heart surgery (double bypass & mitral valve replacement), who is recovering well. Until the next update... love, Jenn
Well I just had my 9th cardiac biopsy and was allowed to travel (within the US) for the first time since the transplant! Everything seems to be going pretty smoothly. My biopsy was on Jan. 25 and was a little worse than the previous biopsy at 1A rejection, but still acceptable. Because of this I get to go down on my prednisone (steroids for immunosuppression), and don't have to go back to Cleveland for about 6 weeks instead of the usual 4 week interval. The CMV was also negative for the third time, and my IgG was >800 (meaning a better working immune system than previously). I had an appointment with my infectious disease doctor and I will continue the Valcyte (med for the CMV) through at least March and then switch to acyclovir. I was also able to get the flu shot and pneumovax (vaccine for bacteria that may cause pneumonia), as the infectious disease doctor thinks I may have an active enough immune system now to actually have a response to the vaccine. I also have been chosen by Cleveland clinic as the case of the year so I get to be presented at their meeting in March and they are sending a camera crew down here! Very weird since I used to be the one presenting the interesting cases instead of being one. I hope it helps if I can answer questions from the other physicians, though.
I also went to Miami to be in one of my best friend's weddings. It was beautiful and I am so happy I was able to participate in the wedding. In true Jenn fashion though, I think I may have overexerted myself since I now have bronchitis, but it was worth it to be able to travel and see so many of the friends I love and be a part of such a special event. Well my next lab work will not be until next week. I also want to say a special prayer for one of my other best friend's dad, who recently had open heart surgery (double bypass & mitral valve replacement), who is recovering well. Until the next update... love, Jenn


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